The demands of caregivers of children with acute lymphoblastic leukaemia in different therapy stages and the exploration of possible interventions: A longitudinal investigation survey at a Tertiary Medical Institution

作者全名："Liu, Yang; Ma, Linyu; Mo, Lin; Shen, Xuelan; Zhong, Dahui"

作者地址："[Liu, Yang; Ma, Linyu; Shen, Xuelan; Zhong, Dahui] Chongqing Med Univ, Natl Clin Res Ctr Child Hlth & Disorders, Key Lab Child Dev & Disorders, Dept Haematol,Oncol Ward,Childrens Hosp,Minist Edu, Chongqing, Peoples R China; [Mo, Lin] Chongqing Med Univ, Natl Clin Res Ctr Child Hlth & Disorders, Key Lab Child Dev & Disorders, Nursing Dept,Childrens Hosp,Minist Educ,Chongqing, Chongqing, Peoples R China; [Ma, Linyu] Chongqing Med Univ, Natl Clin Res Ctr Child Hlth & Disorders, Key Lab Child Dev & Disorders, Dept Haematol,Oncol Ward,Childrens Hosp,Minist Edu, Chongqing 400014, Peoples R China"

通信作者："Ma, LY (通讯作者)，Chongqing Med Univ, Natl Clin Res Ctr Child Hlth & Disorders, Key Lab Child Dev & Disorders, Dept Haematol,Oncol Ward,Childrens Hosp,Minist Edu, Chongqing 400014, Peoples R China."

来源：NURSING OPEN

ESI学科分类：　

WOS号：WOS:000893371900001

JCR分区：Q2

影响因子：2

年份：2023

卷号：10

期号：4

开始页：2273

结束页：2281

文献类型：Article

关键词：early intervention; family caregivers; leukaemia; needs assessment; paediatrics

摘要："AimTo describe the demands of family caregivers of children with ALL at different therapy stages and explore the possible interventions to address their care demands. DesignA longitudinal investigation study. MethodA total of 157 family caregivers of children treated in the Haematological oncology ward of a tertiary medical hospital in China between March and December in 2020 were included in this study. The Comprehensive Needs of Caregivers of Cancer Patients and Families Taking Care of Children Scale was used to investigate the family caregivers of children with ALL. The family caregivers completed the questionnaire accompanied by a researcher within two weeks of each therapy stage, which included the induction, consolidation and continuation stages. ResultsFamily caregivers of children with ALL had many demands that varied based on the stage of therapy. Family caregivers in the induction therapy stage needed more information about their children's disease, having the highest score in information demands (35.60 +/- 5.85). The family caregivers in the consolidation therapy stage needed more information on symptom management and socio-economic support, having the highest score in care and support demands (36.14 +/- 5.12). The family caregivers in the continuation therapy stage (including interim and maintenance therapy stages) focused more on their own and the children's social adaptation, so they scored the highest for psychosocial demands (35.96 +/- 5.69). ConclusionFamily caregivers of children with ALL had different demands that varied based on the stage of therapy. Medical personnel should be aware of the primary needs of family caregivers at different therapy stages to provide early interventions and support based on their demands, ultimately improving the physical and mental condition of family caregivers and the quality of care."

基金机构：Chongqing Science and Technology Commission; Children's Hospital of Chongqing Medical University; [cstc2018jscxmsybX0110]; [CHCQMU2019.03]

基金资助正文：ACKNOWLEDGEMENT This study was supported by the Chongqing Science and Technology Commission (cstc2018jscxmsybX0110) and the Children's Hospital of Chongqing Medical University (CHCQMU2019.03).