Development of a Patient-Reported Symptom Item Bank for Patients with Hepatobiliary or Pancreatic Malignancies: A Systematic Review

作者全名："Zhang, Jingyu; Zhan, Yinxia; Chen, Jiaojiao; Kang, Dan; Xiang, Rumei; Zhang, Ruoyi; Zhang, Yubo; Pu, Yang; Zhang, Jiayuan; Zhang, Lijun; Huang, Yanyan; Gong, Ruoyan; Su, Xueyao; Nie, Yuxian; Shi, Qiuling"

作者地址："[Zhang, Jingyu; Zhang, Yubo; Zhang, Jiayuan; Nie, Yuxian; Shi, Qiuling] Chongqing Med Univ, Coll Biomed Engn, State Key Lab Ultrasound Med & Engn, Chongqing, Peoples R China; [Zhan, Yinxia; Chen, Jiaojiao; Kang, Dan; Xiang, Rumei; Zhang, Ruoyi; Pu, Yang; Zhang, Lijun; Huang, Yanyan; Gong, Ruoyan; Su, Xueyao; Shi, Qiuling] Chongqing Med Univ, Sch Publ Hlth, Chongqing, Peoples R China; [Shi, Qiuling] Chongqing Med Univ, State Key Lab Ultrasound Med & Engn, 1 Med Coll Rd, Chongqing 400016, Peoples R China"

通信作者："Shi, QL (通讯作者)，Chongqing Med Univ, State Key Lab Ultrasound Med & Engn, 1 Med Coll Rd, Chongqing 400016, Peoples R China."

来源：PATIENT PREFERENCE AND ADHERENCE

ESI学科分类：CLINICAL MEDICINE

WOS号：WOS:000920381800001

JCR分区：Q2

影响因子：2

年份：2023

卷号：17

期号：　

开始页：199

结束页：207

文献类型：Review

关键词：patient-reported outcome measures; symptom; item bank; pancreatic carcinoma; hepatocellular carcinoma; cholangiocarcinoma; systematic review

摘要："Background: Patients with hepatobiliary or pancreatic cancers often experience severe symptoms, resulting in a sharp decline in functioning, poor quality of life, and increased mortality risk. Early and effective management of symptoms allows a better quality of life and reduced mortality, depending on the selection of appropriate assessment of specific symptoms for a defined purpose. We aimed to develop a symptom measurement item bank for hepatobiliary or pancreatic cancers.Methods: The Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement was applied to organize this systematic review. The articles validated patient-reported outcome measures (PROMs) for hepatobiliary or pancreatic cancer and published before December 2021 were retrieved from the Web of Science, PubMed, Embase databases and Cochrane Library. Items from the existing PROMs were selected and classified into different patient-reported symptoms based on the concepts and specific underlying constructs of the objects measured.Results: Sixteen unique PROMs were identified across the 29 eligible studies included in our analysis. Items from the literature review (14 PROMs with 421 items for which information was obtained) were selected and classified. As a result of this study, we developed a symptom item bank with 40 patient-reported symptoms and 229 assessment items for hepatobiliary or pancreatic cancer, and fatigue, pain and nausea were the most common symptom items. Conclusion: We developed an item bank to assess the patient-reported symptoms of hepatobiliary or pancreatic cancer. This item bank could allow researchers to select appropriate measures of symptom and provide a basis for the development of a single-item symptom-measurement system."

基金机构："Natural Science Foundation of Chongqing, China [CSTB2022NSCQ-MSX0118]"

基金资助正文："Funding This research was supported by Natural Science Foundation of Chongqing, China (CSTB2022NSCQ-MSX0118) ."