Family management experience of parents of children with chronic heart failure: A qualitative study

作者全名："Zhang, Ai; Zheng, Xianlan; Shen, Qiao; Zhang, Qin; Leng, Hongyao"

作者地址："[Zhang, Ai; Zhang, Qin] Chongqing Med Univ, Dept Cardiol,Childrens Hosp,Chongqing Med Univ, Natl Clin Res Ctr Child Hlth & Disorders, Chongqing Key Lab Pediat,Minist Educ,Key Lab Child, Chongqing, Peoples R China; [Zheng, Xianlan; Shen, Qiao; Leng, Hongyao] Chongqing Med Univ, Dept Nursing, Childrens Hosp, Chongqing, Peoples R China; [Zheng, Xianlan] 20 Jinyu Dadao, Chongqing 401122, Peoples R China"

通信作者："Zheng, XL (通讯作者)，20 Jinyu Dadao, Chongqing 401122, Peoples R China."

来源：JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES

ESI学科分类：SOCIAL SCIENCES, GENERAL

WOS号：WOS:001142816400001

JCR分区：Q2

影响因子：2.1

年份：2023

卷号：73

期号：　

开始页：e36

结束页：e42

文献类型：Article

关键词：Chronic heart failure; Parents; Family management experience; Qualitative study

摘要："Purpose: To explore the experience of family management among parents of children with chronic heart failure.Design and methods: Qualitative descriptive phenomenology was used as the research design. The sample included 16 parents. For data collection, semi-structured interviews were conducted. Colaizzi's seven-step analysis method was used for data analysis. Themes were encoded and created with Nvivo 12.0 Plus software.Results: Three themes and ten sub-themes were identified: (1) weakened family socialization (diminished parental role in social education and insufficient socialization of children), (2) experience of five psychological stages (resistance, self-blame, worry, exhaustion, acceptance), and (3) family management dilemmas (low social awareness of the disease, heavy economic burden, and limited coping style).Conclusion: The experience of parents of children with chronic heart failure is complex. The children have low socialization and face public prejudice. Parents are stressed by social education, economics, and the five psychological stages they have experienced. Families face difficulties such as heavy economic burdens and limited coping styles. Practice implications: To address these complexities, pediatric nursing staff should take steps to improve family management and, as a result, children's quality of life. Our study provides a resource for pediatric nursing staff when implementing family management interventions."

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