Translation and validation of the STAR_x questionnaire in transitioning Chinese adolescents and young adults with chronic health conditions

作者全名："Huang, Yunzhen; Wang, Huaping; de Ferris, Maria Diaz-Gonzalez; Qin, Jian"

作者地址："[Huang, Yunzhen] Calif State Univ Los Angeles, Div Spenal Educ & Counseling, Los Angeles, CA 90032 USA; [Wang, Huaping] Chongqing Med Univ, Dept Clin Nutr, Affiliated Hosp 1, Chongqing 400016, Peoples R China; [de Ferris, Maria Diaz-Gonzalez] Univ N Carolina, Dept Pediat, Chapel Hill, NC 27599 USA; [Qin, Jian] Chongqing Med Univ, Affiliated Hosp 1, Dept Cardiol, Chongqing 400016, Peoples R China"

通信作者："Qin, J (通讯作者)，Chongqing Med Univ, Affiliated Hosp 1, Dept Cardiol, Chongqing 400016, Peoples R China."

来源：JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES

ESI学科分类：SOCIAL SCIENCES, GENERAL

WOS号：WOS:001095736800001

JCR分区：Q2

影响因子：2.1

年份：2023

卷号：71

期号：　

开始页：111

结束页：119

文献类型：Article

关键词：Health care transition readiness; Self-management; STAR(x) questionnaire; Chronic health conditions; Chinese adolescents and young adults

摘要："Background: Adolescent/young adults (AYAs) with chronic conditions must undergo healthcare transition (HCT) preparation until their mid-twenties. Valid HCT readiness measures are lacking in China.Methods: The present study translated, back-translated, and adapted the Self-Management and Transition to Adulthood with Rx = Treatment (STAR(x)) Questionnaire. We examined the psychometric properties of this tool in a relatively large in-patient sample of AYAs with various chronic health conditions at a Chinese tertiary general hospital.Results: We enrolled 624 AYAs aged 10-25 years (19.66 +/- 3.64) with various chronic health conditions. The Chinese version of the STAR(x) Questionnaire demonstrated excellent internal consistency (Cronbach's alpha = 0.83) and reliability with a two-week test-retest (ICC = 0.88, p < .001). Furthermore, the Chinese version revealed a three-factor structure (self-management, disease knowledge, and provider communication) consistent with the revised English version of the STAR(x) Questionnaire. In terms of discriminant validity, the total score of the Chinese STAR(x) Questionnaire showed a significant positive correlation with age but no gender differences were found. In terms of predictive validity, the Chinese STAR(x) Questionnaire was significantly correlated with shorter length of hospitalization and higher frequency of emergency room visit, but the correlations became insignificant after controlling for age.Conclusions: The results suggest that the Chinese version of the STAR(x) Questionnaire is a robust HCT readiness tool in AYAs with chronic conditions and clinicians may find it useful to develop individualized interventions.(c) 2022 Elsevier Inc. All rights reserved."

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